What is life with a severely disabled child? It is a moment by moment thing. It's good, it's bad, it's stressful, it's hard, it's easy. Like any other life, maybe? Maybe...maybe not, because it's not just my life, but hers that lies in the balance, day after day. My decisions are her reality...my choices, her results. There is no more "me", as much as "us". It goes against everything we are taught about individuality, about self-governance, about Me and My and Mine. It is "WE"...nothing more, nothing less. And, in this moment, these are the words that echo in my mind...
Greater love hath no man than this,
that a man lay down his life for his friends.
I admit to having days where I wish my love were lesser.