Monday, December 26, 2011


In a time long ago (a couple of days) and a blog faraway (ahem), a blogger took a particular physical therapist to task for not recording a visit to said blogger's child and for then making a dismissive remark about said documenting of the visit. The forthcoming comments on the blog came as a shock to me, as a few took said blogger to task for taking said PT to task.

Said blogger, in a subsequent post, took the commentors to task...and was yet again...ummm...taken to task by more commentors.

Of course, I'm with the blogger and believe the PT was out of line for a number of reasons but that isn't so much what this is about. One comment in particular frustrated me. Quite simply, it stated that the incident should just be waved off as a simple mistake. After all it was the holidays...let it go.

!!!!!

Ah yes, the holidays...those sacred times of year when families and friends get together for libation, turkey killing, or various other nefarious group like activities, when stores close for maybe 24 hours...and when those of us with disabled kids lose whatever help we have for extended periods.

FYI ladies and gentlemen, there are no vacations in the land of disability. This is not a complaint...it's just a fact. Only those who truly don't get it continue to live under the delusion that there are: hospitals, for instance. I remember all too well the skeleton crews that staffed the floors of our hospital on weekends those many years ago, when Sophie would, invariably, crash. And that was just the weekends...forget about holidays.

Yes...forget about holidays...completely. They do not exist. So, I get that many of you out there who do have help to begin with, are doing without right now and you are doing all the usual things you do plus everything else...and likely not going to work...until the help returns from their respective time off/vacations. I, for one, am enjoying hanging around the house in my sweat-pants and t-shirt (because, lord knows, I dress like a friggin' model all the rest of the time).

But the other thing that bugged me about the holiday comment was that, once again, somehow, our kids' needs are to be set aside for the ease and comfort of others. Does incompetence take holidays? Obviously not. To dismiss hauling someone out on the carpet for their unprofessional behaviour because of some random celebratory time period just reinforces the general idea that most people have about our kids...they're 'tards...they don't know the goddam difference anyway.

Unacceptable.

So, to those of you who think one blogger was too heavy handed with the PT...I repeat said blogger's viewpoint: you don't get it...not during the holidays, likely not ever.

14 comments:

  1. You are right on, Claire. There is nothing I could add except to pepper a few of my comments with a "fuck" here or there. People who don't get it usually create "justification" stories for other people who don't get it. Makes 'em feel better....

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  2. Phil: thanks...and agreed. Loved the comment you left on the other post.

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  3. I think, perhaps, a threesome with Single Dad would work out well for us, Claire.

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  4. Elizabeth and S.D.: Not touching that one with a ten inch...I mean ten foot pole....

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  5. If it turns into an orgy, please call me!



    Wendi in Oregon

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  6. Doin' it alone right now ... Get ya!

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  7. Right on! I've had a crazy holiday so far, but thankfully my incredible mom and dad are staying with us until next week (they drove down from Illinois).

    Highlights include making my former husband extremely angry (and honest to god, not on purpose. It's just I forget that I'm responsible for multiple reminders regarding what time things start and when to show up. So, he missed Daniel blowing out birthday candles and my daughter's duet at church.)I'm bad.

    Then, we found my MIL on the floor of her home on Christmas day (her husband just died in August, and she's declining). I called the paramedics and then when it turned out she could speak and move some, they tried to talk me into transporting her to the ER myself. I used my nursey bossiness to tell them that, no, I wanted them to provide that help. My disabled son was sitting in the car with his grandmother, and my husband is weak from months of cancer treatment. We won't be taking her ourselves, damnit!

    Fortunately, one of the paramedics is the father of a student I help take care of at school (six yo with brain tumor) and he is one of the kindest, sweetest people I've ever met. He backed me up. She's now inpatient with a torn rotator cuff and nasty beginning of a pressure sore.

    Btw, I could be up for an orgy myself soon.

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  8. P.S. We didn't want to transport my MIL in our van since she was so unstable on her feet, and Daniel woke up with a nasty cough that morning. Rich followed behind the ambulance, and I met them after taking Mr. D home to be with my parents.

    MIL is one of the most optimistic ladies I've ever met, and she is doing well tonight.

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  9. Doin' it alone too, mhk...

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  10. Your "No Vacation" heading says it all. If you have kids with special needs, any holiday, or school break is hard, very, very hard, and to the person who was replying to that other blogger as to where is her Christmas spirit of kindness and forgivness. Well it will be there I'm sure just as soon as that commenter, volunteers to watch that persons child, and run some errends for her, or just come and watch her kid so she can take a nap or have 5 minutes to herself. Some people so do not "get it" and making those kinds of comments show how much they do not understand.

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  11. So speaking of holidays and disabilities. Our 16 year old daughter has a severe form of CP and uses a wheelchair. She is a full-time wheelchair user and a type 1 diabetic.

    We also have an 18 year old son. When our son was quite young, he said his goal in life is to visit all 7 continents while his parents were staying paying for it. This summer we will visit South America which is our 6th continent. Only Antarctica left. We usually travel for at least a month at a time.

    When our daughter was a baby my husband and I vowed we would never let disability stand in the way of doing what we would otherwise have done. In following that vision, the universe and those around us have supported us. Please check out our travels at www.NoOrdinaryJourney.com.

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  12. Laverne Bissky: checked out your website. Wonderful!

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  13. I'm a PT and I think you were right on. No excuse for not doing your job--and frankly, paperwork is part of your job! My naturopath tried to bill under false codes because my insurance doesn't "like" anxiety being the primary code, and I gently and firmly let her know that she had to use codes that had at least some basis in fact. Has to be done...ethics are ethics.

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